Blogging has been a challenge lately. You put so much of yourself into a post but don't want to put your entire life "out there" for the world to see. I try to be positive most of the time, but lately I'm having a tough time. So much is going on between my life & my friends & family - all hard stuff.
David is diabetic but a very well-controlled diabetic. His numbers are amazingly good. He indulges but is careful. Of course it helps that I hound him when I think he's going overboard. Rather than get angry, he lets me know where his numbers are & what he's doing. We tend to have pretty good communication about this issue.
So what's the problem if he's controlled? Well, diabetic neuropathy. It has made life a living hell. David was officially diagnosed as a diabetic after we came home from China. The neuropathy diagnosis came along about 2 years ago & the onset has been amazingly fast. I neither can nor do I want do go into what it's like for him to live in constant horrific pain.
As long as I know David, he's always been a sweater. (Yuck! I hate sweat.) It has gotten so much worse since the neuropathy. He has to wear fentanyl patches for the pain but they come off when he sweats. Insurance covers the cost of 30 days worth of patches. Sounds great, but when you sweat them off, you run short. And then you have to pay for them out of pocket. We have spent anywhere from $300 up to needing to replace a whole month's supply at $1500. You can't just go without the patches either. The pain is excruciating. There is so much more to this
The docs have come up with a plan to help us out though. This past Friday, David was given shots of botox (yes, you read correctly). Botox is supposed to help with hyper hydrosis (a/k/a super sweating). Oh. And insurance does have a code but the dr's office refused to use it. Another $1,000 out of pocket. OTOH, the shots have worked. So far.
If you read this David, I hope you don't mind. I've really been needing to get this crap off my chest. I honestly hope this works - for all of us. Erin doesn't really know of life without diabetes & having to see her daddy when he's in pain just plain ole sucks. It isn't any better for me either.